11-month-old Charlie guard, who suffered one form of the syndrome of depletion of mitochondrial DNA, has died a week before he was supposed to the year.
On the eve of the court refused the boy’s parents in their request to take his son home from the hospital after Charlie was taken to the hospice. Daily Mail reports about the death of Charlie Garda, noting that his struggle for life was watched by the whole world.
Charlie Gard was born 4 August 2016 in the family of a British Chris Garda, Connie Yates. Carriers of the affected gene turned out to be both parents, but they didn’t know about it until I passed the exams because of a diagnosis of the son.
Modern medicine does not know ways of treatment of the syndrome of depletion of mitochondrial DNA. The doctors could only alleviate the condition of a child placed in the intensive care unit of the London hospital Great Ormond Street Hospital, and keep him alive.
Charlie’s parents insisted to carry it to one of the American private clinics to conduct pilot courses nucleoside analog therapy. The effectiveness of this method, used for the treatment of HIV patients, in case Charlie is still difficult to assess. But there is evidence that it has helped one child in the US, and this child’s parents spoke in support of the family Gard.
Willingness to help Charlie expressed Pope Francis and U.S. President Donald trump. In early July, the Presbyterian hospital in new York city and the medical center «Irving» at Columbia University stated that they are willing to accept the child, provided that there is agreement on safe transportation, no legal barriers, as well as a resolution from Management on sanitary inspection behind quality of foodstuff and medicines for experimental treatment.
Charlie’s parents believe their son could be saved, if the experimental therapy has been tried before.